NIHR research collection which covers several aspects of dementia
2nd February, 2021
The National Institute for Health and Research (NIHR) recently published a piece of work, bringing together NIHR research on several aspects of dementia. The NIHR asked a number of health and social care professionals, carers and people with lived experience to comment on the research that was relevant and important to them, and how it might influence current management and support, and from that information have put this together a collection of useful information which can be found here: https://evidence.nihr.ac.uk/collection/dementia/
Dementia is a group of symptoms associated with a loss of brain function. The symptoms can include loss of memory, mood changes and confusion. There are many different causes of dementia, and many different types, including Alzheimer's disease and vascular dementia. In the UK, 850,000 people currently live with dementia. Around one in 14 people aged over 65 have a form of dementia, and one in six people over 80. The total cost of care is £34.7 billion.
With 52% of the UK public knowing someone who has been diagnosed with a form of dementia, the impact and challenges that this syndrome presents is a major issue of interest and concern for individual patients, families, carers and health services.
This Collection brings together NIHR research relating to dementia. We asked a number of healthcare professionals, carers and service users to comment on selected Alerts that are relevant and important to them. Their commentary provides a valuable insight and highlights what we can learn from the research summarised in the Alerts.
The Alerts included in this collection are:
- Informal dementia carers had to make difficult decisions about paid care during COVID-19
- People with dementia from ethnic minority backgrounds face extra barriers in accessing care
- Careful phrasing of requests by hospital staff could help people with dementia accept care
- Loneliness in people with dementia is linked to social isolation and depression
- People with mild memory problems are left in limbo between health and dementia, and need help to make lifestyle changes
- Most people caring for relatives with dementia experience loneliness
- Occupational therapy at home may benefit people with dementia and their carers
- Working may improve quality of life for carers of people with dementia
- Loneliness, but not social isolation, predicts development of dementia in older people
- Training programme to improve communication between staff and patients with dementia in hospital shows promise
- A less healthy lifestyle increases the risk of dementia
- Goal-setting can help people with early-stage dementia improve function
- Dementia Care Mapping: Care home managers and staff need more support to improve care